Raised so far
BC ALS Centre of Excellence
The ALS Society of British Columbia (ALS BC) is a registered nonprofit charity providing support to ALS patients, their families and caregivers to ensure the best quality of life possible for those living, and affected by ALS. The Society also supports National Research Programs directed to finding the cause of, and a cure for Amyotrophic Lateral Sclerosis (ALS).
The ALS Clinic located at GF Strong Rehabilitation Centre and is funded through Vancouver Coastal Health. The Clinic is being served by 4 part-time Neurologists, who provide excellent clinical care. What is missing is the opportunity for ALS patients in BC to participate in clinical trials in BC. In order to address this gap, the ALS Society fully supports:
- clinical research in BC;
- clinical trials held in BC; and
- a Clinician/Scientist hired to champion and run the program
With a goal of raising $5 million for this program, the ALS Society of BC has on deposit over $1 million which was received from an estate bequest and fundraising. This amount was matched by the Province of British Columbia, raising the total to over $2 million.
Once the total funding required is raised, The University of British Columbia, Faculty of Medicine will facilitate the recruitment of a full-time dedicated ALS Clinician-Scientist. This person will champion clinical trials so British Columbians living with ALS have the same, if not greater opportunities, to participate in clinical trials as do others in larger populated provinces.
“CLINICAL CARE HELPS ME TODAY, BUT AN ALS RESEARCHER HELPS ME FIND HOPE FOR THE FUTURE.” - BRAD MACKENZIE, ALS PATIENT AND ADVOCATE
For more information, contact:
Wendy Toyer, Executive Director
ALS Society of BC
Phone: (604) 278-2257 Ext. 222